Tuesday, 23 June 2009

I sometimes hate titles

Well really it's hard to blog. Hard to do anything.

Crohn's sucks.

I am extraordinaryilyilyily tired. I have put on weight cos of the steroids which I am back on again again. They also can weaken my muscles. If steroids don't work then there is another drug they can try but that has risks for liver and other organs. Crikey.

I get stuck on the toilet and have to do extraordinary things to get off alone.

I fall again in the middle of the night - freezing cold, naked and with my thigh bent over an upright footrest and legs trapped under the other footrest. slammed shoulder and head into floor as I went down - ended up on my side. Jammed up against the bed and hanging off the footrest by my thigh. OOOOOOOWWWWWWWWWWWWWWWWWW. Can you picture that.

Anyway it was only about 12 minutes till two great ambos and neighbour M were with me. In my pain and position I had to instruct them how to turn my wheelchair on and turn the speed down and then drive the wheelchair out from under me while the other ambo lifted me a bit with a belt. Fark. But of course the wheelchair driving ambo drove it the wrong way and jammed me up a bit more. OOOOWWWWWW. Never mind they get it done and get me into bed and are respectful, careful, fun and not bad looking either.

M hid in the hallway for awhile until she was assured that my bone wasn't poking out of my leg. After the ambos left she stayed with me for nearly an hour to make sure I warmed up and that the shock settled.

12 minutes is a long time to shout OOOOWWWWWWWWWW a lot and contemplate my lot and my future. Scary.

That fall was last Wednesday night and I am still so weakened by it. I have been resting and getting extra support. Lucky I have been saving some hours up. I haven't been able to do work I said I would (just gathering and compiling some proformas and position descriptions and rewriting a bit). Too tired. Gotta save the arm energy for getting off the loo.

I am sleeping 12 - 14 hours a day if I can.

So that's the dark side sprinkled with bright bits of light.

Some good stuff now.

On Sunday T came round and we got a lamb roast going. Plus of course roast spuds, pumpkin, onion, and beetroot with gravy oh and brussel sprouts perfectly cooked by me YUMMMMMM. Marg came over and the three of us got tucked in. We all watched a movie that was a gift from a friend. Called "Once" and a nice simple movie to enjoy. We ate some chocolate and raved on. Had a good arvo.

Sitting around inside with the heating on while it rains and blows and sleeping all day are nice. Jimmy cuddles up to my legs when I'm in bed and Callie keeps my lap warm when I'm up.

My new vege garden is going well. Watch out for pics and the story soon.


  1. Wow Glee! That stinks, having a fall like that. And feeling so crook now. Still, sounds like your neighbor is a godsend. And at least the ambos were nice and kinda cute. Gotta see the good things in life eh?

  2. Sending hugs and prayers your way!